About Health Stories for You

Health Stories for You is a one-of-a-kind digital library of video stories, recorded by real people, sharing their health story experiences.

The Patient Engagement Research Lab, led by Dr. Amy Waterman, began collecting stories from living kidney donors, living kidney donor transplant recipients, family and friends of recipients, and people in need of a living kidney donor in the summer of 2018, using an innovative storyteller capturing platform.

The digital library technology empowers participants to record their story anywhere, anytime, on any smartphone, tablet, or laptop. Participants receive an email invitation with a link to record a video story. Open-ended prompts guide Storytellers to topics of discussion and ensures the educational value of their narrative. Upon conclusion, the video segments automatically stitch together into one seamless story.

The digital health stories platform has collected stories from living donors, recipients, allies, including those exploring the idea of donation, and some looking for a living donor. Storytellers come from diverse racial and ethnic backgrounds, geographic regions, age, and life experience. By sharing their candid personal stories, they each help to raise awareness about the need for living donors to help solve the kidney donor shortage.